Health and Me

Ishita Roy

Former Little Mix singer Jesy Nelson's Twin Babies Have SMA-1; Signs She Is Asking Other Parents To Look Out For

SMA-1. a rare disease, known as the spinal muscular atrophy type 1 or the Werdnig-Hoffmann disease is when the muscle weakness appears at birth or within the first six months. This rare condition prevents infants from sitting unassisted and causing severe breathing, swallowing, and sucking difficulties, leading to a poor prognosis without aggressive support. This condition has impacted the twin babies of the former Little Mix singer Jesy Nelson. Her twin babies may never be able to walk. However, she said that her babies will "fight all the odds" after they were being diagnosed with such a rare genetic condition.

Also Read: <a href="https://www.healthandme.com/nutrition/eat-ice-cream-says-dr-ezekiel-emanuel-along-with-other-simple-tricks-to-live-a-long-and-healthy-life-article-153397021" data-type="tilCustomLink" target="_blank">'Eat Ice-cream' Says Dr Ezekiel Emanuel, Along With Other Simple Tricks To Live A Long And Healthy Life</a>

Nelson, 34, and her fiancé, Zion Foster welcomed their twins, Ocean Jade and Story Monroe Nelson-Foster in May, when they were both born prematurely. In an emotional Instagram video, posted on Sunday, Nelson revealed the diagnosis her twin babies had. 

“We were told that they’re probably never going to be able to walk; they probably will never regain their neck strength, so they will be disabled, and so the best thing we can do right now is to get them treatment, and then just hope for the best,” she said.

“Thankfully, the girls have had their treatment, which you know, I’m so grateful for because if they don’t have it, they will die," she further said. 

Nelson's babies were diagnosed four months of, what she said, "gruelling" hospital appointments, and so she wanted to raise awareness of the condition and the signs one should look out for because "time is of the essence" with the condition. 

“I just think that I can raise as much awareness about this as possible, and the signs, then, you know, something good has to come out of this,” said Nelson.

Read: <a href="https://www.healthandme.com/health-news/sma-type-1-what-this-health-condition-could-mean-for-jesy-nelsons-babies-mobility-article-153395473" data-type="tilCustomLink">SMA Type 1: What This Health Condition Could Mean For Jesy Nelson’s Babies’ Mobility</a>

<h2>Jesy Nelson Twins: What Are The Signs of SMA-1?</h2>

Nelson said that there could be some common signs to look out for, which includes floppiness, inability to hold yourself up without support, a "frog-like" positioning of the legs without much movement, and rapid breathing in the tummy.

"If anyone is watching this video and they think they see these signs in their child, then please, please take your child to the doctor, to the hospital, because time is of the essence, and your child will need treatment. And the quicker you get this, the better their life will be," she added.

<h2>What Are The Other Types Of SMA?</h2>

There are five recognized subtypes of SMA, classified by the age symptoms appear, severity, and expected life span:

SMA Type 0 (congenital SMA): This extremely rare form appears before birth, with reduced fetal movement. Newborns often show severe muscle weakness and usually experience respiratory failure, with death occurring at birth or within the first month.

SMA Type 1 (severe SMA): This accounts for roughly 60% of SMA cases and is also called Werdnig-Hoffman disease. Symptoms start within the first six months, including weak head control and low muscle tone (hypotonia). Infants may struggle to swallow and breathe, and without respiratory support, life expectancy is typically under two years.

SMA Type 2 (intermediate SMA): Also called Dubowitz disease, symptoms appear between six and 18 months. Muscle weakness worsens over time, usually affecting the legs more than the arms. Children may sit but cannot walk. Around 70% survive into their mid-20s, with respiratory complications being the main cause of death.

SMA Type 3 (mild): Known as Kugelbert-Welander disease, this type appears after 18 months. Weakness primarily affects the legs, making walking difficult, but breathing issues are rare, and life expectancy is generally unaffected.

SMA Type 4 (adult): The mildest form, it appears after age 21. Muscle weakness progresses slowly, and most people remain mobile, with normal life expectancy.

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SMA-1. a rare disease, known as the spinal muscular atrophy type 1 or the Werdnig-Hoffmann disease is when the muscle weakness appears at birth or within the first six months. This rare condition prevents infants from sitting unassisted and causing severe breathing, swallowing, and sucking difficulties, leading to a poor prognosis without aggressive support. This condition has impacted the twin babies of the former Little Mix singer Jesy Nelson. Her twin babies may never be able to walk. However, she said that her babies will "fight all the odds" after they were being diagnosed with such a rare genetic condition.Also Read: 'Eat Ice-cream' Says Dr Ezekiel Emanuel, Along With Other Simple Tricks To Live A Long And Healthy Life Nelson, 34, and her fiancé, Zion Foster welcomed their twins, Ocean Jade and Story Monroe Nelson-Foster in May, when they were both born prematurely. In an emotional Instagram video, posted on Sunday, Nelson revealed the diagnosis her twin babies had. “We were told that they’re probably never going to be able to walk; they probably will never regain their neck strength, so they will be disabled, and so the best thing we can do right now is to get them treatment, and then just hope for the best,” she said.“Thankfully, the girls have had their treatment, which you know, I’m so grateful for because if they don’t have it, they will die," she further said. Nelson's babies were diagnosed four months of, what she said, "gruelling" hospital appointments, and so she wanted to raise awareness of the condition and the signs one should look out for because "time is of the essence" with the condition. “I just think that I can raise as much awareness about this as possible, and the signs, then, you know, something good has to come out of this,” said Nelson.Read: SMA Type 1: What This Health Condition Could Mean For Jesy Nelson’s Babies’ MobilityJesy Nelson Twins: What Are The Signs of SMA-1?Nelson said that there could be some common signs to look out for, which includes floppiness, inability to hold yourself up without support, a "frog-like" positioning of the legs without much movement, and rapid breathing in the tummy."If anyone is watching this video and they think they see these signs in their child, then please, please take your child to the doctor, to the hospital, because time is of the essence, and your child will need treatment. And the quicker you get this, the better their life will be," she added.            View this post on Instagram            A post shared by @jesynelson]]>What Are The Other Types Of SMA?There are five recognized subtypes of SMA, classified by the age symptoms appear, severity, and expected life span:SMA Type 0 (congenital SMA): This extremely rare form appears before birth, with reduced fetal movement. Newborns often show severe muscle weakness and usually experience respiratory failure, with death occurring at birth or within the first month.SMA Type 1 (severe SMA): This accounts for roughly 60% of SMA cases and is also called Werdnig-Hoffman disease. Symptoms start within the first six months, including weak head control and low muscle tone (hypotonia). Infants may struggle to swallow and breathe, and without respiratory support, life expectancy is typically under two years.SMA Type 2 (intermediate SMA): Also called Dubowitz disease, symptoms appear between six and 18 months. Muscle weakness worsens over time, usually affecting the legs more than the arms. Children may sit but cannot walk. Around 70% survive into their mid-20s, with respiratory complications being the main cause of death.SMA Type 3 (mild): Known as Kugelbert-Welander disease, this type appears after 18 months. Weakness primarily affects the legs, making walking difficult, but breathing issues are rare, and life expectancy is generally unaffected.SMA Type 4 (adult): The mildest form, it appears after age 21. Muscle weakness progresses slowly, and most people remain mobile, with normal life expectancy.