Former Little Mix singer Jesy Nelson has opened up about her twin baby daughters being diagnosed with a rare genetic disorder that could mean they "probably will never walk." Jesy and her musician partner, Zion Foster, welcomed Ocean Jade and Story Monroe Nelson-Foster prematurely last May. On Sunday, she shared in an Instagram video that her daughters have Spinal Muscular Atrophy (SMA), which she called the "most severe muscular disease." "It affects every muscle in the body — legs, arms, even breathing and swallowing," she explained. Below, we break down more about this health condition.

Jesy Nelson Twins Facing SMA Type 1 Condition

Jesy Nelson revealed the heartbreaking news that her eight-month-old twins have been diagnosed with the rare genetic disorder Spinal Muscular Atrophy, which may mean they never walk. The 34-year-old singer and her fiancé, Zion Foster, 27, welcomed daughters Ocean Jade and Story Monroe Nelson-Foster in May after a complicated pregnancy.

In an emotional Instagram video, Jesy struggled to hold back tears as she admitted: "I am grieving a life I thought I was going to have with my children."

SMA gradually weakens all the muscles in the body, causing floppiness, breathing and swallowing difficulties, and delays in motor development. Jesy shared that her life has been completely upended as she now acts as a caregiver, managing breathing machines and performing tasks that no parent should have to do with their child.

SMA Type 1: What Is It?

SMA Type 1, also known as Werdnig-Hoffman disease, is the most severe form of Spinal Muscular Atrophy. It is a genetic condition that leads to progressive muscle weakness due to a lack of Survival Motor Neuron (SMN) protein. Symptoms typically appear before six months of age and include poor head control, weak cries, trouble swallowing, and an inability to sit on their own. Without early, aggressive treatment, this can cause severe breathing and feeding problems and often leads to early death, though new therapies are improving outcomes, according to the Cleveland Clinic.

Jesy Nelson Twins: Types of SMA

There are five recognized subtypes of SMA, classified by the age symptoms appear, severity, and expected life span:

SMA Type 0 (congenital SMA): This extremely rare form appears before birth, with reduced fetal movement. Newborns often show severe muscle weakness and usually experience respiratory failure, with death occurring at birth or within the first month.

SMA Type 1 (severe SMA): This accounts for roughly 60% of SMA cases and is also called Werdnig-Hoffman disease. Symptoms start within the first six months, including weak head control and low muscle tone (hypotonia). Infants may struggle to swallow and breathe, and without respiratory support, life expectancy is typically under two years.

SMA Type 2 (intermediate SMA): Also called Dubowitz disease, symptoms appear between six and 18 months. Muscle weakness worsens over time, usually affecting the legs more than the arms. Children may sit but cannot walk. Around 70% survive into their mid-20s, with respiratory complications being the main cause of death.

SMA Type 3 (mild): Known as Kugelbert-Welander disease, this type appears after 18 months. Weakness primarily affects the legs, making walking difficult, but breathing issues are rare, and life expectancy is generally unaffected.

SMA Type 4 (adult): The mildest form, it appears after age 21. Muscle weakness progresses slowly, and most people remain mobile, with normal life expectancy.

Jesy Nelson Twins: What Are the Symptoms of SMA?

Muscle weakness is the hallmark of SMA, typically starting in the muscles nearest the body’s core. Symptoms vary depending on the type.

Symptoms of SMA Type 0 include:

• Reduced fetal movements
• Arthrogryposis (joint contractures)
• Low muscle tone (hypotonia)
• Severe muscle weakness
• Life-threatening breathing issues

Symptoms of SMA Type 1 include:

• Limited head control
• Hypotonia
• Loss of reflexes (areflexia)
• Cannot sit without support
• Abnormal breathing patterns, including a bell-shaped chest
• Difficulty swallowing, which can affect growth (failure to thrive)
• Weakness in facial muscles, appearing later in the disease

Just ahead of Holi, the Food Safety and Standards Authority of India (FSSAI) seized fake paneer near Noida, along with 1,400 kg of fake khoya in Jhansi, and 400kg of expired ghee. The FSSAI started a series of raids in the Indian state of Uttar Pradesh and Rajasthan ahead of the festivities, when the demands of these food items are increased. Health and Me previously reported on the FSSAI raids in Kanpur where oil, rotten dates, and sweets were found to be adulterated.

Paneer Seized Near Noida At Yamuna Express Way

FSSAI on 27 February posted a video where officials could be seen disposing of a large quantity of adulterated paneer at a landfill site. FSSAI noted that the consignment was intercepted late at night at Jewar Toll Plaza on the Yamuna Expressway. The sample was seized and sent for laboratory testing, while rest of the stock was destroyed immediately.

From time and again news of adulterated paneer have made headline. Fake paneer is an adulterated, non-dairy, or low-quality substitute made using starch, hydrogenated oil (vanaspati), urea, detergent, or ammonium sulphate to mimic real milk cheese. It is found in street foods and local markets, and feels rubbery.

How to test fake paneer? The easy way to test is to use iodine on it, and if it turns blue or black, it means it is fake.

Read: Kanpur Food Adulteration: FSSAI Seizes 14,000L of Oil, 1320Kg Rotten Dates And More Ahead Of Festive Season

1,400 kg Of Adulterated Khoya In Jhansi

In another series of raid by FSSAI in Jhansi, officials confiscated nearly 1,400kg of adulterated khoya. This too happened as a part of a late night operation.

A mobile laboratory unit detected starch adulteration and fungal contamination in the product. The khoya confiscated was worth 3.5 lakh and was destroyed on the spot after inspectors determined that they were unsafe for consumption.

In the images shared by FSSAI, it could be clearly seen that mould-infested khoya had been dumped and discarded.

Expired Food Seized In Rajasthan

FSSAI on March 1 raided in Salumbar district of the Indian state of Rajasthan, where authorities confiscated nearly 400 kg of expired and contaminated food items. This included ghee, cooking oil, tea leaves and spices. Samples from several shops were collected and sent for tests.

Cases Of Contaminated Food In India

Not too long ago, Health and Me reported food contamination from Indore's Bhagirathpura, the same place which was the epicentre of water contamination that took many lives. Health and me also reported the news of Horlicks adulteration in Odisha.

In another news, bacteria were found in Amul milk packages, along with Mother Dairy and Country Delight. Eggoz too landed in a controversy, when a YouTube video went viral claiming that the sample tested positive for Nitrofuran.

MicrobioTx, a Bengaluru-based gut health startup tested samples from urban populations across 9 Indian states and 14 cities and found that people are significantly exposed to pesticides, insecticides, antibiotics, steroidal growth regulators, and forever chemicals.

The independent study found:

• 78% were exposed to pesticide residues, with 36% exposed to three or more pesticides, indicating cumulative exposure that may pose serious health risks.
• 54% showed presence of antibiotics, linked to antimicrobial resistance, harder-to-treat infections, and disruption of the gut microbiome that may contribute to metabolic disorders.
• 39% were exposed to steroids, compounds that may cause endocrine disruption and increased carcinogenic risk.
• 38% tested positive for forever chemicals, persistent toxins that may cause cancer risk, reduced fertility, thyroid disease, hormone suppression, high cholesterol, liver damage, and ulcerative colitis.
• 17% of the samples had 10 or more toxins in their blood across 3 categories, indicating hidden chronic exposure.

In a significant breakthrough for faster diagnosis of tuberculosis -- the world’s most infectious disease --, the World Health Organization (WHO) has recommended tongue swab tests.

The new recommendations come as many people with TB do not produce sputum, but are contributing to transmission. The swab tests may not only expand access to testing but also enable early and timely treatment that can help break chains of TB transmission.

The updated guidance also includes recommendations for the use of near point-of-care molecular tests - the nucleic acid amplification tests (NPOC-NAATs) for drug-resistant TB and pooling of sputa as a diagnostic strategy for the initial detection of TB and drug resistance.

“The WHO has just issued recommendations on new near-point-of-care (NPOC) tests for the diagnosis of #TB; easy-to-collect tongue swab samples to expand access to testing; & a cost-saving sputum pooling strategy to increase testing efficiency for TB & RR-TB,” Tereza Kasaeva, Director - WHO department on HIV, Tuberculosis, Hepatitis, in a post on social media platform X.

“These new recommendations mark a major step toward making #TB testing faster and more accessible,” she said, while calling on countries to roll out the guidelines to close diagnostic gaps.

What Are Tongue Swabs

Tongue swabs are new, readily available, and easy-to-collect specimens for use with NPOC-NAATs and low-complexity automated NAATs (LC-aNAATs) for the initial detection of TB, with and without drug resistance.

The global health body recommends using the low-complexity automated NAATs as initial diagnostic tests in adults and adolescents with signs and symptoms of lung TB.

However, in cases where respiratory samples such as sputum (expectorated or induced), tracheal aspirate, and bronchoalveolar lavage (BAL) cannot be obtained, tongue swabs may be used as initial diagnostic tests for TB.

Tongue swabs may be collected by trained personnel or self-collected with guidance from trained personnel.

Dr Rakesh PS, from the International Union Against Tuberculosis and Lung Disease (The Union), in a LinkedIn post mentioned individuals having no or minimal symptoms, and often cannot present respiratory specimens.

"Tongue swabs offer a practical way to include this otherwise “missed” group in the diagnostic pathway. By enabling testing of individuals who would otherwise be excluded, tongue swab–based testing can enhance the efficiency of active systematic screening," Dr. Rakesh said.

"Tongue swabs are a strategic alternative when obtaining a respiratory specimen is difficult or not possible -- and, when used appropriately, they can strengthen our fight against TB," he added.

What Are NPOC-NAATs

NPOC-NAATs are swab-based molecular tests for TB detection that can produce results from a primary sputum or tongue swab sample in less than one hour. These tests use instruments that can be battery-operated and do not require specialized infrastructure for use or storage.

The tests can be done in basic peripheral laboratories, such as those that perform smear microscopy, and health clinics, mobile units, or community sites that do not have laboratories.

They can be performed by health care workers with basic technical skills because they do not require laboratory methods like precision pipetting.

What Is Sputa Pooling

In sputum pooling, samples from several individuals are mixed and tested together. It is a proven strategy to improve testing efficiency and reduce costs in resource-constrained environments.

Global TB burden

While being preventable and curable, TB remains a top infectious killer, with an estimated 10.7 to 10.8 million new cases and 1.23–1.25 million deaths in 2024, as per WHO.

The infectious disease disproportionately affects low- and middle-income countries.

While TB incidence rates have shown a slight, uneven decline since 2015, the overall burden remains high, with 30 countries accounting for 87 percent of global cases, led by India, Indonesia, China, the Philippines, and Pakistan.

An increasing number of the National Health Service or the NHS UK doctors are now choosing to practise privately. This has happened at the backdrop of mounting pressures and burnout that reshaped the landscape of general practice in England. According to a recent BBC report on Care Quality Commission (CQC), data found a sharp rise in doctors registering to work outside the NHS.

In the five years to the end of 2025, the CQC received 1,238 new registrations for "independent consulting doctors" in England. This is a 212 per cent increase as compared to 396 doctors registering to work independently over the five years. Between 2024 and 2025, registrations rose by 58 per cent.

Independent consulting doctors provide care privately, either in person or online, across a range of specialties including general practice, skin conditions, women’s health and aesthetics.

"You Don't Have Time To Go To The Toilet"

Dr Yvonne Girgis-Hanna is among those dividing her time between NHS and private practice. Speaking to the BBC, she said full-time NHS work had become unsustainable.

“I could not work as a full-time NHS GP,” she said. “The days I do in the NHS, the next day I'm totally wiped out… You might have 30 face-to-face contacts, then extra telephone calls and paperwork. You just don't have time to even go to the toilet.”

She now sees private patients in Essex, charging from £129 for a 20-minute appointment, with options of up to an hour. Longer consultations, she told the BBC, allow for continuity of care reminiscent of the “cradle to grave” model that once defined family medicine.

Demand, she argues, is the central strain on NHS general practice. With practices receiving roughly £120 per patient annually, frequent attenders can stretch resources thin. “If you imagine £120 for somebody that might be presenting 20 times, it is very little,” she said.

Patients Pay For Time And Familiarity

A 2024 LaingBuisson report noted that 13 per cent of GP consultations were private, which is up by 3 per cent two decades ago. This is because, some patients want faster access and longer appointments. Vanessa Ravazzotti, 51, told BBC that NHS wait worsened her symptoms and heightened anxiety. This is when seeing a private GP felt "mentally better". "She knows me; I know her."

Ian Miller, 85, who has arthritis, told the BBC he found short NHS appointments difficult and disliked seeing different clinicians. Private care offered familiarity and focus: “You immediately get down to the problem.”

Greater Autonomy, But Less Affordability

Dr Karen Benson, who works privately from a pharmacy in Hertfordshire, said the environment is calmer. “I haven't got constant interruptions… it's a much more relaxed atmosphere." She said she is better able to offer longer appointments and address the root cause of the illness. However, some patients switch back to NHS for specialist referrals that they cannot afford privately.

Dr Oliver Denton of the British Medical Association (BMA) told the BBC that while it is difficult to pinpoint a single cause, “with growing pressures within the NHS it is no wonder more may be considering looking to work outside the health service.”