Diagnosed At 7, Bedridden At 25, This Woman’s Battle With A Chronic Skin Condition Led To Something Inspirational

Diagnosed At 7, Bedridden At 25, This Woman’s Battle With A Chronic Skin Condition Led To Something Inspirational

Credits: Youtube/@ThePatientstory

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Updated May 12, 2025 | 03:00 AM IST

SummaryDiagnosed with psoriasis at 7 and psoriatic arthritis at 25, Alana's painful journey from steroid dependency to holistic healing sparked a global movement of self-love, awareness, and chronic illness advocacy.

When Alana was just seven, she was diagnosed with psoriasis — a chronic autoimmune condition that left painful, scaly patches across her skin. By 25, her diagnosis expanded to include psoriatic arthritis, a debilitating condition that affects the joints and often hides in plain sight. Her story, however, is not just one of suffering — it’s a powerful testament to resilience, self-acceptance, and the ongoing battle for awareness around invisible illnesses. In a world obsessed with flawless appearances, Alana’s candid journey from being overmedicated to embracing a holistic lifestyle offers a much-needed spotlight on the realities of chronic skin conditions and the strength it takes to advocate for one’s body.

“I remember scratching until my skin bled,” Alana recalls. “Doctors didn’t know what was happening. My childhood became a blur of nurse’s office visits and topical creams.” Misunderstood and often misdiagnosed in its early stages, psoriasis is an autoimmune condition where the skin cells build up rapidly, forming scales and itchy, dry patches. In Alana’s case, the progression was swift and emotionally jarring.

By the age of nine, Alana was already on a restrictive anti-inflammatory diet. While other kids enjoyed sweets and processed snacks, she studied ingredient labels, became intimately familiar with holistic remedies, and avoided sugar like it was poison. “My mom would say, ‘Psoriasis feeds on sugar,’” she shares. “So while my siblings had Oreos, I had the sugar-free health store version—if I was lucky.”

Navigating adolescence with visible skin symptoms brought its own trauma. “Middle school was brutal,” Alana confides. “I wore arm socks and stacked bracelets just to hide my arms. I’d wear wigs to hide my scalp. There were days I couldn’t even look at myself in the mirror.”

Like many who live with psoriasis, Alana also faced the psychological burden—body image issues, bullying, and feelings of shame that often go unseen in clinical narratives. “No one talks about the depression that comes when you’re in remission. Your skin is clear, but emotionally, you’re still healing.”

What is Psoriatic Arthritis?

At 25, just as Alana thought she had a handle on her condition, she experienced her first flare-up of psoriatic arthritis—another autoimmune condition closely tied to psoriasis. “I couldn’t walk for a week. I was terrified,” she remembers. “But my dad, who has it too, told me—‘This is how it starts. Buckle up.’”

Psoriatic arthritis is marked by inflammation of the joints, often developing years after skin symptoms appear. It adds a layer of physical disability to an already taxing disease and affects nearly 30% of people with psoriasis. For Alana, it meant another upheaval—mentally, physically, and emotionally.

Psoriatic arthritis is a form of arthritis that affects individuals with psoriasis, a condition that causes red, scaly patches on the skin. While psoriasis typically develops first, in some cases, joint issues appear before skin patches or simultaneously. The condition is marked by joint pain, stiffness, and swelling, which can affect any part of the body, including the fingers, toes, and spine. Psoriatic arthritis varies in severity, with disease flare-ups alternating with periods of remission.

Over the years, Alana tried it all—steroids, topical creams, biologics, cortisone injections. “Steroids helped, but the more I used them, the thinner and more fragile my skin became. It got worse in the long run.” Like many patients, she experienced the rollercoaster of temporary relief followed by long-term setbacks.

A biologic medication gave her a temporary reprieve from flare-ups, allowing her to enjoy a rare period of skin clarity. “It was my party girl era. My skin was clear, I felt normal, but the side effects were awful—migraines, nausea, and daily pills.”

Ultimately, the fear of long-term side effects led Alana to quit biologics in 2018. With that decision came a resurgence of symptoms—but also, a shift in mindset.

Alana decided she would no longer hide. “I thought, so many people have skin conditions. Why should I be ashamed?” She began sharing her story on social media. To her surprise, her vulnerability resonated. “One day a brand reached out for a skincare campaign. Next thing I know, I’m on billboards.”

For someone who once layered bracelets to hide her skin, it was a full-circle moment. “If I could go back and show my 7-year-old self—the goth little girl in all black—these pictures, I’d tell her, you’re going to be okay. You’ll help others one day.”

Symptoms of Psoriatic Arthritis

Psoriatic arthritis is a chronic disease that progressively worsens over time, though there are periods when symptoms improve or temporarily disappear. The key symptoms include:

Swollen Fingers and Toes: Often described as painful, sausage-like swelling in the fingers and toes.

Foot Pain: Pain in the areas where tendons and ligaments attach to bones, such as the Achilles tendon and the soles of the feet.

Lower Back Pain: This is caused by spondylitis, which inflames the joints between vertebrae and in the spine-pelvis region.

Nail Changes: Psoriatic arthritis may cause nails to form small dents, crumble, or separate from the nail beds.

Eye Inflammation: Uveitis causes eye pain, redness, and blurry vision, and if untreated, it can result in vision loss.

In 2019, Alana made a dramatic switch to a vegan lifestyle. “I left a dermatologist appointment in tears because I didn’t want to go back on meds. That day, I cut everything—dairy, meat, processed foods—cold turkey.” She admits now that she wasn’t fully informed. “I dropped to 100 pounds. I was frail. I didn’t know how to nourish my body properly.”

Still, her holistic journey taught her what worked—and what didn’t. Through trial and error, cookbooks, and community forums, she carved a path rooted in listening to her body. “There’s no one-size-fits-all with psoriasis. What helps one person might trigger another.”

Today, Alana continues to live with both psoriasis and psoriatic arthritis. She still faces flare-ups, but she’s better equipped mentally, emotionally, and socially. “This disease doesn’t define me. It’s part of my story, not the whole story.”

Her message to others? “Don’t let shame win. Find your community. And know that healing isn’t just about clear skin—it’s about acceptance, too.”

Alana’s journey highlights the often-hidden aspects of chronic skin conditions—misdiagnosis in childhood, the emotional toll of visible symptoms, the physical limitations of psoriatic arthritis, and the long, non-linear road to healing. As public conversations around autoimmune diseases and skin positivity grow, stories like hers are critical reminders that healing is just as much about self-love as it is about science.

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