Susana Moreira, a 41-year-old woman from Santiago, Chile, has lived with a debilitating form of muscular dystrophy since childhood. She was diagnosed with this condition at the age of 8. Her condition has been progressive since then. As a result, she was bedridden for over 20 years. She was once able to move, but can now no longer walk, bathe, or care for herself. Her muscles have continued to weaken and she is expected to eventually lose the ability to speak and breathe without help. What Happens In Muscular Dystrophy?As per the National Institute of Neurological Disorders and Stroke, muscular dystrophy or MD refers to a group of genetic diseases that cause progressive weakness and degeneration of skeletal muscles. These disorders vary in age of onset, severity, and the pattern of affected muscle. However, one thing that is definite is that this condition is progressive in nature. As per NIH, it affects by weakening the muscles. Muscles are made of thousands of fibers and these fibers contain cells surrounded by an outer layer of membrane. Muscle fibers that make these individual muscles are bound together by connective tissue. Muscles are activated when an impulse, or signal is sent from the brain. What happens in MD is the protective membrane of the muscle is damaged and the muscle fibers begin to leak protein creatine kinase and take excess calcium. This damages the muscle fibers and then causes the fibers to die, and thus leads to progressive muscle degeneration. Right To DieMoreira, is also facing the same condition, which will eventually make her unable to live with dignity. Therefore, she wants to be able to choose a dignified death, though euthanasia. However, euthanasia and assisted dying are currently illegal in Chile. Her deeply personal plea has reignited a national conversation and become a symbol of the push for legal reform.The Bill Is StuckChile’s debate over euthanasia is not new. In 2021, the Chamber of Deputies approved a bill to allow both euthanasia and assisted suicide for adults suffering from terminal or incurable illnesses. But the legislation has since stalled in the Senate.If passed, Chile would join countries like Belgium, Spain, Canada, and the Netherlands in legalizing both practices. In Latin America, Colombia already allows euthanasia, and Ecuador recently decriminalized it, though regulations are still pending.Speaking Out Before It's Too LateConfined to her home, Moreira spends her days reading, watching movies, and playing video games. Outings are rare due to the pain caused by sitting in a wheelchair for too long. In a letter to President Gabriel Boric, she urged him to support the bill and shared her fears about reaching a stage where she could no longer communicate her wishes.President Boric responded publicly, calling the bill “an act of empathy, responsibility and respect,” and promised to prioritize it in his final year in office. However, political turmoil has since pushed the issue to the sidelines. A Growth In SupportWhile Chile was once considered one of Latin America’s most conservative nations, attitudes toward euthanasia have shifted. A 2024 Cadem survey found that 75% of Chileans support euthanasia. Another study by the Center for Public Studies reported 89% support for allowing it either always or in special cases.Supporters argue the law would offer people suffering from terminal conditions a humane and legal option. Critics, however, say better access to palliative care must come first. Chile passed a law in 2022 guaranteeing palliative care, but experts argue its implementation is uneven.The debate has also been shaped by other moving stories, such as that of Valentina Maureira, a teen who pleaded publicly for euthanasia in 2015 but was denied and died shortly after.