Shane, who had welcomed his second born son Kooper a year ago, noticed a strange glow in their child’s eye. Young Kooper’s parents, from Wales, explained that although after noticing this glow, they did not think much of it. They saw a white patch in their son’s eyes in low light, which prompted them to google the symptoms with one suggesting shining light directly into his eyes, which made the glow apparent! What they didn’t know at the time is that their son would soon be diagnosed with a rare form of cancer that affects kids under the age of six: Retinoblastoma. Cancer is the leading cause of death in children and adolescents, it is one such disease that can unilaterally affect anyone, regardless of age, gender or any other factors. Every year more than 300,000 kids are diagnosed with cancer globally, according to the Indian Cancer society. According to the American Cancer Society, Retinoblastoma is the most common type of eye cancer among children, it accounts for about 2% of all childhood cancer. However, it is a rare cancer affecting 3.3 cases per 1 million people under the age of 20 The World Health Organization (WHO) explains that 80% of children with cancer are cured, a surprising statistic showed that less than 30% of children are cured, in low- and middle-income countries (LMICs). Unexpected Symptom Of Cancer The Childhood Eye Cancer Trust (CHECT) emphasizes that common indicators of retinoblastoma include a white glow in the eye – which may only be visible under specific lighting conditions or in photographs – a squint, a change in the eye's appearance, or swelling of the eye. Often, only a single symptom might be present. While a photo can reveal the tell-tale white glow, it's not always the case. Therefore, CHECT strongly advises seeking professional medical advice even if a photo doesn't show a glow but other symptoms are apparent. Kooper’s Diagnosis And Initial Complications Shane described the anxious period leading up to the diagnosis, "I noticed it on a Friday, and we decided to take him to the doctor first thing on Monday. The weekend was filled with panic, endless online searches, and imagining the worst – it was a terrifying experience. The doctor referred us to the local hospital a couple of days later, which was another unsettling time of uncertainty. We had read that there could be other reasons for the obscured red reflex in his eye, so we clung to the hope of a different diagnosis." The family had an appointment at Birmingham Women and Children's Hospital in December 2024. Shane reflected on receiving the devastating news, "I don't think anything can truly prepare you to hear that your one-year-old has cancer, might lose his eye, or might never see out of it again – it was an incredibly emotional time. We immediately called our parents and used WhatsApp groups to inform the rest of the family. They had already suspected retinoblastoma after our initial hospital visit, so this was confirmation. We used the information provided at the hospital to reassure them and explain the treatment plan. The doctor discussed various chemotherapy options and also offered genetic testing, which we opted for, considering Kooper has an older brother and for Kooper's future and potential children." Treatment for Retinoblastoma and Side Effects Kooper has started receiving chemotherapy as the primary treatment for his retinoblastoma. His father, Shane, explained that the treatment plan has involved multiple approaches so far, including delivering chemotherapy drugs directly into an artery, using laser therapy, and administering chemotherapy via injections. The effectiveness of these different methods has varied. A recent medical examination indicated that the main tumor in Kooper's eye had reduced in size. However, the doctors also noted the growth of smaller clusters of cancerous cells, known as spores, within his eye. Because of this, there's hope that the most recent treatment, the chemotherapy injection, will be successful in addressing this new development. Shane also described a difficult side effect that Kooper experiences after each treatment session. For several days following his chemotherapy, when he is on steroid medication, Kooper becomes very distressed. This period of discomfort makes it impossible for his parents to send him to nursery, which is challenging as they both work. Despite these difficulties, Shane mentioned that Kooper surprisingly seems to enjoy his visits to the hospital. What is Retinoblastoma? According to The National Eye Institute retinoblastoma is a rare form of cancer that forms in the retina, it can cause blindness as well as can be life threatening. However, early diagnosis and treatment can help prevent vision loss as well as from spreading cancer The most common thing parents notice with this eye cancer is that the black circle in the middle of their child's eye looks white when light shines on it. Often, this shows up in flash photos. The National Eye Institute explains that other symptoms include. Eyes that look crossed or one eye that wanders.An eye that looks sore, puffy, or red.Eyes that seem watery all the time.Not being able to see very well.Falling down more often.Bumping into things.Having trouble getting around the house.Holding toys and books very close to the face to see them better.