When 12-year-old Jody started struggling with everyday tasks—tripping over her own feet, fumbling with buttons, losing her balance—her mother, Sarah Levett, chalked it up to anxiety and autism. What they didn’t know at the time was that these small, seemingly unrelated signs were the first red flags of a devastating diagnosis: a fast-growing, aggressive Stage 4 brain tumor.After a four-year fight, Jody passed away in 2022 at the age of 16. Her loss has left a permanent hole in her family’s life. Now, her mother is sharing Jody’s story, not just as a tribute but as a warning for other parents and caregivers to recognize the signs of brain tumors early—and to push for answers when things don’t feel right.Jody’s symptoms began innocuously. During the summer holidays of 2018, she started taking longer to get dressed and found it increasingly difficult to do simple things like fasten buttons. At first, doctors attributed these delays to anxiety about returning to school.But things progressed quickly. Within weeks, Sarah noticed her daughter bumping into objects, walking in a crooked line, and complaining of headaches and nausea. Jody also experienced mood swings, screaming fits, and facial twitching—symptoms that doctors later recognized as classic signs of a brain tumor.It wasn’t until a second visit to the doctor that Jody was referred for a scan at the Royal Surrey Hospital. That scan revealed a mass in her brain. Within days, she was transferred to St George’s Hospital in London, where surgery removed about 80% of the tumor.The shock of a cancer diagnosis was compounded by the unknown. Doctors couldn’t identify the exact type of brain tumor Jody had—even after multiple biopsies and surgeries. They could only tell the family that it was fast-growing and aggressive.Sarah expressed deep frustration about the lack of clarity. “It’s so hard not knowing,” she said. “How can you treat something when you don’t even know what it is?”This diagnostic uncertainty limited treatment options and made long-term planning nearly impossible. Sarah is now pursuing private testing on Jody’s biopsy samples, hoping they might yield new insights.After the initial operation, Jody underwent chemotherapy and six weeks of radiotherapy. She missed most of the school year and struggled with common side effects—fatigue, nausea, and hair loss. To ease her discomfort, she shaved her head early and wore bandanas to school when she could attend.Her resilience stood out. Jody loved school and insisted on staying engaged with her studies whenever possible, even when her body was failing her. Between hospital-based lessons and home tutoring, she did everything she could to stay connected to normal teenage life.Sarah transferred Jody to a smaller school to better support her medical needs—a move that helped Jody remain involved in learning while managing treatments.Fifteen months of clear scans gave the family cautious hope—until October, when a routine MRI revealed the tumor had returned. Jody underwent another surgery just before Christmas, followed by another round of radiotherapy and oral chemotherapy.Then, in July, another tumor appeared. More surgery followed—this time complicated by focal seizures. Despite it all, Jody kept her focus on what mattered most to her: attending school and living life on her own terms.“She has been through so much,” Sarah said. “But her main concern was whether she’d miss class.”The emotional toll on the family has been immense. Sarah continues to manage grief, unanswered questions, and the feeling that the healthcare system is under-equipped to deal with rare pediatric cancers.“There’s just not enough research,” she said. “Not enough awareness. Not enough support for families like ours.”Subtle Signs of Brain Tumor In KidsBrain tumors are the leading cause of cancer-related deaths among children and adolescents in many countries, yet they receive disproportionately low research funding. The symptoms can be subtle, dismissed as behavioral issues, migraines, or developmental delays—especially in kids. The early warning signs of brain tumors in children include:Headaches (especially in the morning)Unexplained vomitingBalance and coordination issuesVision changesBehavioral shifts or mood swingsDelayed milestones in younger childrenSarah has turned her grief into action. She’s organizing a fundraiser for The Brain Tumour Charity, aiming to raise both money and awareness. She also advocates for stronger mental health support for bereaved families, another glaring gap in the current healthcare landscape.“The main aim now is to stop this from happening to another family,” she said. “To make sure someone, somewhere, hears our story and recognizes the signs early enough to make a difference.”Jody’s legacy isn’t just in the fight she endured but in the awareness her story now brings. Her quiet bravery, her love for school, and her unshakeable strength in the face of uncertainty have touched the lives of many—and may help save others.For Sarah and families like hers, the battle doesn’t end with loss. It continues through every conversation, every campaign, and every effort to improve the system for those who come next. If you suspect something’s wrong with your child’s health—don’t wait. Ask questions, request scans, and push for answers. Early diagnosis saves lives.